Data Protection & Ethics

National confidential enquiries have to meet the strictest possible standards of confidentiality and information governance. This means complying with the Data Protection Act 1998 which defines law in the UK in relation to the processing of data on identifiable living people. It also means adhering to recognised standards in relation to information governance.  The culture of our organisation is focused on ensuring that all staff understand and respect data protection and information security. CMACE has detailed information security standards about which staff receive training.  These are available on request.
 
 In May 2010 CMACE commissioned an independent review on information governance which, whilst making a number of recommendations for further improvement, confirmed that CMACE complies with the required standards.
 
Informed consent is the fundamental principle governing the use of patient identifiable information by any part of the NHS or research community. It is recognised that there are situations where informed consent cannot be obtained. In England and Wales, Section 251 of the NHS Act 2006 (originally Section 60 of the Health and Social Care Act 2001) provides a power for patient identifiable information needed to support essential NHS activity to be used without the consent of patients. This can be used only to support medical purposes that are in the interests of patients or the wider public, where consent is not a practicable alternative and where anonymised information will not suffice. CMACE has successfully obtained and retained section 251 approval under the NHS Act 2006 to receive unanonymised patient-related information from health care providers.Nonetheless, all information is anonymised as soon as patient identifiability is no longer required. Enquiry policy is that all documentation except that needed for ongoing databases is destroyed prior to the publication of reports, although a limited fully anonymised database is retained to enable CMACE to answer statistical queries, e.g. in the form of Parliamentary Questions.
 

Latest News

CMACE releases it's report Maternal obesity in the UK: findings from a national project.

This report has revealed for the first time the prevalence of severe maternal obesity in the UK, details the complications and consequences of obesity in pregnancy, and outlines the implications for the care of obese pregnant women. [07/12/2010]

Saving Mothers’ Lives Conferences March 2011

Now open for bookings - Early Bird rate available until 31st December 2010. [30/11/2010]

CMACE publishes briefing on genital tract sepsis from 'Saving Mothers' Lives 2006-2008

Emergent Theme Briefing #1: Genital Tract Sepsis, September 2010 [05/10/2010]

CMACE Resources: Forms and Tools